tag:blogger.com,1999:blog-7627359055129929523.post6168339374385797807..comments2023-10-31T05:32:44.370-07:00Comments on Kace In Point: Sleepless in TennesseeKacehttp://www.blogger.com/profile/09118554909161596003noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7627359055129929523.post-56640389668604856782016-03-26T15:19:51.058-07:002016-03-26T15:19:51.058-07:00I've heard weighted blankets can be very helpf...I've heard weighted blankets can be very helpful in calming down stressed kids. My son, who is autistic, also went through about 6 months of no sleep, tantrums, crying, etc. I wish I could say I know what I did because I don't. One day, he just started sleeping again. I'm praying for him to start sleeping better and to give you a little break. Jenhttps://www.blogger.com/profile/04907568994378362042noreply@blogger.comtag:blogger.com,1999:blog-7627359055129929523.post-29599042976099610932016-03-25T07:13:20.174-07:002016-03-25T07:13:20.174-07:00While we are not in the exact same situation I do ...While we are not in the exact same situation I do understand where you are coming from. Bear is 2.5 years old and his vocabulary is behind that of his peers. He throws temper tantrums and cries at what feels like the drop of a hat. It's like he knows the words or sign to use, but his emotions make it impossible for him communicate what he needs at that moment. Just know you aren't alone nor are you the only one going through this. Jennhttps://www.blogger.com/profile/06633862152372392695noreply@blogger.comtag:blogger.com,1999:blog-7627359055129929523.post-55256894324764684362016-03-25T06:13:41.847-07:002016-03-25T06:13:41.847-07:00Another CI mama here, my lo had a progressive HL t...Another CI mama here, my lo had a progressive HL till he was 3.5 yo due to bi lat EVA. Late diagnosed at about 18 months is when we started our journey of discovery and he was aided just after his 2nd birthday. At that point he had a few words he retained from before some of the more agressive loss, we tried signing, but he hated it, he knew people used words to communicate, he lived in a world of sound beofre the volume got turned down on him. And we struggled to find ways to communicate, to make him happy, his hearing fluctuated so often that most of the time his HA's were not programmed correctly, and the hairs in the cochlea got more damaged and sound became more distorted with each fluctuation. He couldn't talk but that was how he was determined to get his message across. We got the stares in public, we cried in exhaustion, the most basic interactions like 'do you want juice or milk?' became meltdowns of tears and frustration. We saw anger in our baby, anger such a small child shouldn't experience. When he did finally lose all hearing in both sides, his world was silenced... PROFOUND... nothing left to amplify. It took almost 6 months to get the cochlear implants approved by our insurance company. Six months he lived in silence, remembering a world with sound, bringing batteries for hearing aids and toys, wanting us to turn the sound back on. In the beginning of those months he would hide his face if I tried to sign to him, or use gestures, he wanted to hear me. I remember him throwing his favorite book across the room because it had those buttons that made sound and he couldn't hear them any more. Finally the day came, the surgery was approved, no doubt by the grace of God we had our surgery day scheduled! We knew we had a long road ahead of us, but the journey back to sound and communication was finally going to begin for our sweet boy, he was going to have something he didn't even know existed CONSISTENT access to the world of sound. December 23rd 2012 activation day! Our amazing audiologist came in over Christmas break to activate him bilaterally! It was a Christmas miracle ♡ It took 8-9 months form him to really begin to grasp what all the sounds were, many he had never had access to. Fast forward 3 years and 3 months later, he is closing the gap on language delay, he's in Kindergarten, knows all his letters and sounds, is learning to read and write, he understands so much, he's so creative in make believe play and makes up elaborate super hero themed stories, all from a small boy people said would never talk. He is smart, he's worked so hard to get where he is and because of that he has this amazing compassionate, positive sprit. It's still hard sometimes and I think there will be struggles related to his deafness crop up throughout his life but I know one thing for sure God has amazing things in store for him and every struggle and tear, sacrifice and hours worked toward his goals is only going to make him stronger, make our family stronger. What you are doing IS HARD, REALLY REALLY REALLY HARD! but SO SO WORTH IT!♡ Rejoice in every triumph no matter how small, the journey is long and often so tiresome, but when things really start flowing and connecting for you little one those endless struggles will become a memory you write about, the worries fade out and when new struggles arise you'll be able to take them head on... thinking 'I got this!' because you do, you got this now and you'll look back and remember that. Stay strong mama you are not alone, remember to find the joy in your journey ♡ ~ Jackie H. P.S. extra sensory input is commonly needed for D/HH kids, jumping, swinging, lifing, massages where you tug a little at the joints, and my favorite a big tight HUGS ♡ You can find good books for ideas on amazon and tons of free ideas on Pintrest ;) Extra sensory input helped my little guy through the hardest times. Anonymoushttps://www.blogger.com/profile/17384581451934492493noreply@blogger.comtag:blogger.com,1999:blog-7627359055129929523.post-8793498794326830802016-03-25T05:25:21.136-07:002016-03-25T05:25:21.136-07:00I understand where you are coming from, to a point...I understand where you are coming from, to a point. O is delayed in speech, badly. I get all the things that come along with a toddler not able to tell you what they want or need. I am sure you situation is 10 fold to mine. I only have him to focus on, for now. I am super considered that once the new baby comes I will be a walking zombie. How will I be able to function with 2 children not sleeping through out the night and go to work part-time. Oryons therapist suggested a weighed blanket. I made one but he hates to be covered so that didn't work. I don't know if you have tired one before,but if not you are welcome to borrow mine. Good luck in this phase of life. If you have any tips I am open ears.Anonymoushttps://www.blogger.com/profile/06599275440091026210noreply@blogger.comtag:blogger.com,1999:blog-7627359055129929523.post-60418001115854428102016-03-25T05:22:01.238-07:002016-03-25T05:22:01.238-07:00I understand where you are coming from, to a point...I understand where you are coming from, to a point. O is delayed in speech, badly. I get all the things that come along with a toddler not able to tell you what they want or need. I am sure you situation is 10 fold to mine. I only have him to focus on, for now. I am super considered that once the new baby comes I will be a walking zombie. How will I be able to function with 2 children not sleeping through out the night and go to work part-time. Oryons therapist suggested a weighed blanket. I made one but he hates to be covered so that didn't work. I don't know if you have tired one before,but if not you are welcome to borrow mine. Good luck in this phase of life. If you have any tips I am open ears.Anonymoushttps://www.blogger.com/profile/06599275440091026210noreply@blogger.com